Състояние: Добро
Забележка: Чисто книжно тяло, позахабен външен вид.
Подзаглавие: Essential information for anyone who knows, loves or provides care for someone with M. E. , sourced from the world’s leading M. E. experts
Издателство: hfme. org
Град на издаване: London
Наличност: singular
Ширина (мм): 210
Височина (мм): 295
Дебелина (мм): 10
Корици: Меки

Essential information on the neurological disease M. E. sourced from the world's leading M. E. experts. Suitable for M. E. patients, their friends and family, partners, carers or doctors. The book includes a foreword by international M. E. expert Dr Byron Hyde. M. E. is a distinct neurological disease and is not at all the same thing as 'CFS. ' Learning the facts is not time-consuming or complicated. Supporting your ill friend or family member or patient more fully by being aware of the basic facts of M. E. could make all the difference in the world to them. This book shows you how. Jodi Bassett is the founder of the international M. E. charity, HFME. Jodi contracted M. E. in 1995 when she was just 19. HFME contributors also aim to advocate for those non-M. E. patients who have been given the always meaningless 'CFS' diagnosis, and subsequently denied correct diagnosis and treatment.

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Contents

CHAPTER ONE: Introduction 9

A one-page summary of the facts of M. E.
M. E. - The shocking disease 12
What is M. E. ?: Summary

CHAPTER TWO: Information for friends, family and partners 23

So you know someone with M. E. ? 25
So you know someone with M. E. ? Part 2 33
The misdiagnosis letter for M. E. patients: Form 36

CHAPTER THREE: Information for carers and hospital staff 39

Hospital or carer notes for M. E. patients 41
Hospital or carer notes for M. E. patients: M. E. patient care form 47
Why patients with severe M. E. are housebound and bedbound 54
Assisting the M. E. patient in managing relapses and adrenaline surges 66
Assisting the M. E. patient in managing relapses and adrenaline surges: Summary 75
Assisting the M. E. patient in having blood taken for testing 77
Assisting the M. E. patient in managing bathing and hair-care tasks 79
Assisting the M. E. patient in managing toileting tasks 85
The HFME 3 part ability scale for M. E. patients 87
The HFME ability scale for M. E. patients: Summary 96
The HFME ability and severity checklist 98

CHAPTER FOUR: More information on M. E. 101

M. E. vs. M. S. - Similarities and differences: Condensed modified version 103
What is M. E. ? A historical, medical and political oven ie 115

CHAPTER FIVE: Information about HFME and final comments 133

The aims of HFME and the reasons for the aims of HFME 136
Why hummingbirds as a metaphor for M. E. ? 140
Personal acknowledgments & Acknowledgments 142
The HFME reference list 145
Additional HFME resources available online 156